“Imagine you’ve been diagnosed with an incurable genetic disease and you are told you will not only lose your ability to walk and move your arms, but you will die between now and the next 18 months. What would you do?”
The parents of 5-month-old Avery Lynn Canahuati, who’s suffering from spinal muscular atrophy, had to ask themselves this same question. Their answer? Avery’s Bucket List Blog.